I hope the blog has entertained you whilst also giving you some insight into what Young Onset Parkinson's is like. I hope too that, whilst not diminishing the impact of the condition, I have shown that you can live with it. A positive attitude is important.
For a writer, knowing when and what to write is important. But knowing when to stop is just as vital. I don't want to repeat myself and I don't want my writing to become formulaic and predictable.I don't want to write just for the sake of writing.
I've always espoused the view that, when you have nothing to say, you should say nothing.
And right now I find myself in that position. I'm out of words.
Or, more accurately, I'm out of the right words. I have lots that I want to put down on paper but it is not really SLICE OF LIFE. So I haven't posted it here.
So, with your permission, I am going to take a break to recharge the batteries. As long as it takes.
Thanks for all your kind comments and encouragement. Oh, and get your friends to buy the books!
sliceoflife at hotmail dot co dot uk
In the meantime, here is what many of you have said is their favourite piece of my writing.
ANGEL (published - 6th August 2010)
In the meantime, here is what many of you have said is their favourite piece of my writing.
ANGEL (published - 6th August 2010)
Two decades ago, I worked in Indiana, part of America’s almost
mythical Midwest. Bloomington, a college town and home of the Hoosiers was little
more than a small dab of green paint on a huge agricultural canvas. It was high summer and rain hadn’t fallen in nearly
six months. Fields, normally, shoulder-high and plump with corn, were dry,
bleached flats that stretched out to infinity. When the tractors weren’t
shimmering in the heat on the open plains, they raised dusty swirls, twists and
eddies that glided silently like spectral figures over the distant horizon. Television
talked of The Dust Bowl, and those who lived through the 1930s spoke of the
similarities and drew anxious parallels. This was the land of Steinbeck, of Tom
Joad and the Grapes of Wrath.
Along with friends, I was invited to speak at a conference
in Kansas, 500 miles away. We could have flown but chose to drive, in a rattling
hired sedan without air conditioning, hour after soporific hour, on arrow-straight
undulating roads strung with telegraph poles, the monotony broken only by
occasional animal carcasses or rusted flatbeds, abandoned where they had fallen.
“Welcome to nowhere” read the faded graffiti on one decaying Chevy. Through
Vincennes, St Louis, Columbia and Independence, and on towards Lawrence on Interstate
70, we played away the hours with tapes of Tom Waits, as we gradually assumed
the manners and personae of Kerouac, Cassady and Ginsberg. We left the
interstate, with its honking horns, and set off on a two-lane blacktop. Apart
from occasional trucks, we had the road to ourselves
Night fell swiftly in August on the summer plains and, as
the stars filled that ink-black prairie sky, the fuel gauge gradually slipped
into the red, and we thumbed the map for our location. Nowhere – just as the
graffiti had said. As Joe tapped the fuel gauge, we reached another brow in the
road. A flickering sign in the distance read “Food. Gas” with that laconic
precision so prevalent throughout the plains states. As the car coughed, we
pulled in to a tiny one-pump gas station. It felt like a step back in time. On
the far side of the road was a chalk-white steer skull on a pole. While Joe
fuelled the car, Lesley and I stretched our legs, the air still hot from the
day. A man in faded overalls and a grease-stained baseball cap emerged from a
tiny shack-shop of breeze blocks with a tin roof, kicking the dust as he
walked. “Do you have food?” I asked. There was the long pause of a man used to spending
his words carefully. “Got all you need there” he said, nodding to the shop “Annie
Mae’ll help you”
A moth fluttered behind a dirty cracked window next to an
antique Coke machine that groaned and burped as its refrigerator fought hopelessly
against the heat. A small bell tinkled as I opened the door. Somewhere in the
distance the long prairie wail of a goods train pierced the night’s silence. I
picked Monterey Jack cheese, ham, sesame rolls and rootbeer and placed them on the
cracked red Formica counter next to a small tarnished brass bell. As I reached
for the bell, there was a rustle of the fly curtain at the back of the shop.
“Hello” I called. “Be with you” said a girl’s voice. “Annie Mae?” I asked and
she smiled, all freckles and dimples, as she totted up the groceries on the
corner of a newspaper in her childish hand. She licked the pencil tip then
pronounced “That be five dollars and forty three cents”. She held up her open hand
to signal ‘five’ and giggled. I saw she was missing a thumb. "Funny
girl" I said. She laughed.
I realised my wallet was missing the moment I reached into
my trousers and slapped my pockets in the reflex movements of a man unexpectedly
penniless. “Vincennes” I said to myself, as I remembered leaving it on the counter
of the Dairy Queen, where we had stopped for cones in the late afternoon. Five
hours earlier and two hundred miles back on the Interstate. “I have money in
the car” I said in explanation. "Back in a minute".
"Well we need to find a bank in the morning" said
Lesley "cos I've just spent our last fifteen bucks on gas". Like
royalty, Joe never carried money, always relying on Lesley. I explained about
the ice cream parlour in Vincennes.
"Annie Mae, I have no money. I'm really sorry" I
stuttered and began to put the groceries back. Even in the half light of the
shop, my beetroot red face must have been obvious. "It's okay" she
said "take the food. You can pay on your way back".
I protested. But Annie Mae would have none of it. "Just
don't tell my pop" she winked. And giggled.
As we spluttered out onto the highway again and gathered
speed, I told Joe and Lesley about Annie Mae and the food. "Real
cute" said Lesley. "Real dumb" said Joe, sparking a row between
the two.
We were in Lawrence for two days. Two days hot enough to fry eggs on
the bonnet of the car. I did the lecture, with voice barely audible over the
air conditioning, my slides buckling in the heat from the projector. I told the
listeners of dopamine receptors and the nigrostriatal pathway, of dysregulation
and dopamine transporters. Everything I
knew about Parkinson’s (I used to be a neuroscientist, remember). There were
questions too, mostly interested in why an Englishman was in Kansas. "Just
following the Yellow Brick Road" I said until it wasn’t funny any more. I
was shown around the labs, invited to dinner with the faculty members, and guest
of honour at a lake party on a bright yellow pontoon boat where we ate slices
of watermelon washed down with Coors from the cooler.
Thursday came, muffins and ham for breakfast and then on the
road to Nowhere. Or wherever it was that we had stopped for gas and food on
Monday night. On a two to one majority, we persuaded Joe to drive back to the
garage and give Annie Mae her five dollars and forty three cents, all in shiny
new coins. As Joe grumbled and muttered, we looked out for the garage. Mile
after mile of dusty emptiness.
Then I saw the cattle skull. We pulled over and I picked up
the envelope with the money. The garage looked different. They must have
replaced the aged single pump. Two fancy new Texaco pumps stood there.
I looked around. Where was the shop? The breezeblock hut was
nowhere. Instead a small glass fronted shop
with plastic fittings occupied the space. A middle-aged man emerged.
"Need gas?" he asked. "No" I said "I need to give some
money to the girl".
He screwed up his eyes. "What girl? Ain’t no girl here”.
"Annie Mae" I said "Freckles? Missing a
thumb".
He looked down and flicked some cigarette ash off his
overalls. "She's not here" he said quietly. A long pause. ”She’ll
come around sometimes. When there are strangers mostly”.
I waited a moment, but no further explanation was
forthcoming. "So where is she now?" I asked.
He nodded in the direction of the corn field opposite.
"She bin in the field some twenty years now”. His voice faltered. “Buried
her there the night her pop brought her in, knocked down by a truck. Folks left
their food behind so she ran across the road after them. She was kind like
that. Always looking to help. Buried her pop a week later. Wouldn't eat or
drink. His little angel she was. Called her Angel Annie somedays".
My mouth was dry and, although he kept talking, I heard nothing
else he said as I crossed the road into the field, the corn rustling in the
dusty breeze. I reached into my envelope for the five dollars and forty three
cents. Shiny new coins glinting in the sun. With a bellow that echoed off the
distant grain elevators, I hurled them as far as I could and stood for a moment
listening to their pitter patter as they fell among the corn. I turned back
towards the car.
From somewhere I heard a giggle.